Terminally Ill American Girl Meets Her Favorite Korean Pop Idols
15-year old American girl Donica Streling meets with members of SHINee (샤이니) at SM Entertainment head office on June 20, 2012 in Seoul, South Korea. Donica, diagnosed with Charcot-Marie-Tooth disease, visited Seoul, South Korea to meet her favorite K-pop groups SHINee and Super Junior after finding hope in listening to Korean pop. (Photo by Chung Sung-Jun)
P. S. [Charcot–Marie–Tooth disease (CMT), also known as Morbus Charcot-Marie-Tooth, Charcot-Marie-Tooth neuropathy, hereditary motor and sensory neuropathy (HMSN), hereditary sensorimotor neuropathy (HSMN), or peroneal muscular atrophy, is an inherited demyelinating disease of the peripheral nervous system.
CMT is predominantly characterized by progressive loss of muscle tissue and touch sensation in the feet, ankles and legs, as well as in the hands, wrists and arms in various types of the disease. Early and late onset forms occur with [on and off] painful spasmodic muscular contractions that can be disabling when the disease activates.
High arched feet (pes cavus) are classically associated with the disorder. Sensory and proprioceptive nerves in the hands and feet are often damaged, while pain nerves are left intact. Overuse of an affected hand or limb can activate symptoms including numbness, spasm, and painful cramping. Currently incurable, this disease is one of the most common inherited neurological disorders affecting approximately 1 in 2,500 people equating to approximately 23,000 people in the UK and 125,000 people in the USA]. – Wikipedia